yuuo: (Here's to us here's to love)
Wife's double-mastectomy went well. Surgeon said he got everything that looked abnormal out of her breast and lymph nodes. (I'd hope he got it all out of her breasts, he took those completely off.) What he took out looked like scar tissue to him, so it's possible she's 100% NED. (Note: NED, not cured. There is no cure for Stage IV breast cancer.) NED meants she's got a decent chance at being one of those tiny outliers who live decades beyond diagnosis. She's already made it past the average three years, and is running strong.

The surgery to remove her ovaries was also successful- they did those at the same time.

She is home, and kinda fading in and out regularly from pain and painkillers. (Hydrocodone/Ibuprofen is a magical thing, and also, if you have issues with Acetaminophen for whatever reason, like my wife, whose cancer had metastasized to her liver, demand this stuff. It's one of the only opiates that's stronger than Tramadol that doesn't come only with Tylenol in it.) But at this exact second, she's up and coherent and on her laptop.

Photographer friend, is who is the first father I became friends with and therefore is very important to us, is leaving today, and it saddens me. Wife's parents leave in a few more days, and Wife's best friend/heart sister is showing up right after that, so I have help with Wife's drains and general care at least until she's at a point where I can do it by myself without having a meltdown. I love my wife, will do anything for her, but uh. I'm not a natural caretaker. I'm not a white mage. I'm the defender. I will fight to the death for her, but medical care is a bit beyond me, at least for long term. So family and friends are all in town to help and I'm so grateful for it.

I'm getting excited to be roleplaying on IJ again. I've been getting some with Wife, but that's on hold until she's fully coherent on a regular basis and can tag without feeling wonky. But, my own heart-sister is joining in, and I'll be playing with her in the meantime. ^_^ Happy me is happy.

I've been kinda plugging away at Hephaestus in the meantime, and Prometheus will be picked back up once I know what's going on in the parts those two overlap at the end. I have a chapter in there to finish now, but it's smushy fluff, and while I love smushy fluff, I have trouble writing it. I'm that writer who likes to rip up your heart and use it for lawn mulch with little reprieve. Suffer my pen. Mwaha.

Cats are doing fine, all told. Loki got his annual and his three year rabies on Wednesday, and Wife went in for surgery on Thursday, so he is more riled than the others. Lots of new people, constantly invading their space (we had some other friends over last night for weekly gaming session), one of them ended up taking a dump on the floor out of stress protest, and we think it might've been Loki, but we're not sure. Thankfully, it was Carolyn who was here to clean it up, and I was at the hospital, so I didn't have to deal with that. :p I'm such a nice person (I would've done it if it'd been me to discover it. I'm not terrible to my cats.)

Although, speaking of taking care of the cats, I need to clean their box. Will do that when I'm done here.

On the mental health front, my doctor put me on clonazapam for my anxiety, since the Ativan had just stopped working and the hydroxyzine was only good for low grade treatment. It puts me to sleep, but it calms my mind in the process. The Ativan put me to sleep, but I was still wound up tighter than a spring when I'd wake up.

I also got my Fetzima upped, because not only is it an anti-depressant, being an SNRI instead of an SSRI, it helps with anxiety... and energy levels. So in about a week, I should start seeing an end to my hypersomnia, at least the level it's been at. It's caffeine pills in the meantime so I can be up when Wife needs me.

And now, I run to do that cat box. Have a good day, friends.
yuuo: (Can somebody help me?)
So I got a call from United Health Care, who are partnered with Nebraska state Medicaid, to follow up on their services, make sure I'm getting what I'm needing from them, and help them figure out where the gaps are and how to fix them, which, I think, is fucking fantastic.

What's odd is that she was confirming my diagnoses, and mentioned that she had bipolar on her record. Which... was news to me. I asked her what my psychiatrist had on record, and she confirmed schizoaffective and anxiety, which... is also odd. My formal evaluation testing came up with those diagnoses, but the doctor went in and did some futzing with the diagnoses so that while the anxiety/panic disorder was correct, I had schizophrenia and possible depression.

I have no idea where the bipolar came in.

And, of course, I can't get into my patient portal for that provider without calling the office for a new link to register with (weird set up, but at least it's with the same portal system as my PCP, so I can switch between the two providers with one login) to see what the fresh hell is up with that.

It is also just now occurring to me that my therapist might've submitted the bipolar diagnosis, since she is licensed to make such calls. Which means I'm super happy that she's volunteering to come with me to my next appointment with my doctor.

My wife wanted to go with me originally to help me remember all the complaints I've had, because not only do I have such a shitty memory that I lose track, I get a bit anxious just seeing the doctor and get afraid that I'm not 'perfect enough' if I'm not responding to his treatments well.

But. Well. We got a letter in the mail on Saturday.

My wife's bilateral mastectomy is the sixth.

Which.

Is when my appointment is.

And I can't reschedule, because I'll run out of my meds before I can get in again, and they won't refill without an office visit anymore. Thankfully, when this came to light at therapy on Monday, my therapist was wonderful and volunteered to come with me, since she has been taking notes on my various concerns and I haven't been, and again, the anxiety and shitty memory. I used to have a decent one, then my disorder got out of control, and the meds I was put on for it fried what was left of my memory neurons.
yuuo: (I won't let you fall apart)
So I may or may not have snuck away with a Ritalin, and boy, am I awake and working and productive and focused enough to actually do those things.

I fucking miss having my own Ritalin. I really do.

Now, back to writing. I just sold a kid to a human trafficker. Must keep up the good work.
yuuo: (Happy hurts sometimes)
Happy to report that I'm almost off the Zoloft. I got a partial prescription of 50 mg pills, with instructions to take them for one week, then cut them in half and take those another week, then I'm done. Huzzah!

Risperdal dosage has been cut in half. I suspect we might stop it entirely next time.

Still on only 40 mg of Fetzima. Would be happier with more, and we discussed waiting until next time to mess with my anxiety medicines. My anxiety has been through the roof lately. I'm scared to leave the house sometimes. But the doctor didn't want to fuck around with too many medicines all at once, so I'm to just hold on and hope for the best in the meantime.

Mental health medicine roulette sucks, but what is, is. At least I'm getting off the Zoloft and the Risperdal. One thing at a time.
yuuo: (Don't leave me like this)
Yeah, yeah, I know, I said I'd do something for Schizophrenia Awareness Week last month. Medicine changes and stress and plain old fashioned depression stopped that. I'll get to it some time. I can't promise when.

That said, I've got a pdoc (abbreviation for psychiatrist) appointment in about an hour and I'm not looking forward to it. I'm hoping he'll take me off the Risperdal entirely, leaving just the Latuda. I want to start getting off the Zoloft, too. But I'm scared we're going to maintain status quo, and that's not good enough. The progress is too slow. I want an increase in the Fetzima, a decrease in the Zoloft, and a cessation of the Risperdal.

I guess we'll see what the doc wants to do.

I miss Ritalin. This tired all the time nonsense is bullshit.
yuuo: (Wherever I go I take you with me)
EEG results are in. I am Depressed. My brain shows no signs of physical damage. My working memory is surprisingly good. My attention is in the shitter.

At least it didn't come back "You are 100% okay you big faker mcfakeyson." Which was my fear.

My prolactin blood draw also came back, my levels were up in the sixties. Which means my prolactin levels match that of a very pregnant woman- it should be 2 to 29 ng/mL. So uh. Yeah. He's weaning me down off the Risperdone, and keeping me on the Latuda. We've removed the .5 mg midday dose, and will decrease more the next go-round.

We also started me on Fetzima ER, which is a serotonin-norepinephrine reuptake inhibitor (SNRI). Which is different from Zoloft, which is a selective serotonin reuptake inhibitor (SSRI). SSRIs are the more common ones used, but since I had a bad reaction to Lexapro many a moon ago, and the Zoloft stopped doing anything fairly quickly and didn't respond to dose changes, we're trying a different type. But, since Fetzima takes a month to kick in, in the name of not sending me to the hospital from feeling shitty, we're not taking me off the Zoloft until I've been on the Fetzima a month, just to keep me from dropping too much and too fast.

So, here's to hoping the Fetzima works, because I really need out of this depression spiral. (Can I say that I have a feeling getting my prolactin levels under control might help, too? Pregnancy hormones, yikes.)

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